Tomorrow I will be meeting with a lady from KXGN news about Autism.
She is looking at doing a story on the services and treatments available in Eastern Montana.
I am more than happy to do the interviews. The more people can learn about Autism, the better off we are.
People need to know that it is not going away and that the far reaching effects of this disorder are going to get phenomenally huge as the Autistic person ages.
Sunday, July 6, 2008
Educating About Autism
Wednesday, July 2, 2008
Kathleen's Speech
Sunday, June 22, 2008
An Ability To Show Concern Even When Autistic
He is currently 8 yrs old and will turn 9 in August.
Nathan is undergoing NAET treatments under the care of a chinese herbalist in Glendive. He has treatments approx once a week.
Since he started his treatments, he is more inclined to talk on a regular basis. He will answer questions, when he wants. He will also add his two cents to a conversation.
He is more inclined to stay out of his Autistic world and willingly participate in family games and general tomfoolery, at which time, he stays completely with us and doesn't retreat back to his world.
He is also noticing more what his brothers and sisters are doing at these times and attempting to emulate it. He is aware that they throw comments out at different intervals depending on what is going on and I have noticed that he is forcing himself to do the same.
For example, with the karate or wrestling games when someone makes contact, inevitably an oomph or an arrgh will be heard. Nathan is now doing the same.
Yesterday I had the mother of all toothaches. I was reduced to tears on multiple occasions, the pain was worse than labour. I would have liked to rip my jaw off as the pain was that severe.
Finally I ended up going to the ER in Glendive and they gave me pain relief and antibiotics.
It finally kicked in at 310 this morning and I can honestly say, since then, I have had no pain and all I am taking now are the antibiotics.
Nathan spent the evening visiting me at intervals after I returned from the hospital. Looking in my eyes and smiling at me and stroking my arm and hair.
He saw my coffee cup in front of the microwave that I had put coffee granules in while waiting for the water to boil and while I was elsewhere, he poured my water from the jug, added milk, and brought the coffee to me in the bedroom where I was supervising the girl's baths.
He had never done that before.
When I was laying on the floor getting jumped on by the girls and Eric, Nathan came and stood beside me and when it looked like someone was getting too rambunctious, he put his hand on their arm and held them, as if to tell them, to take it easy.
When I lay down on the bed to tell the girls a story at night, Nathan lay down beside me until I had finished and got up then he left too.
He stayed up until 4am. At which time we were both able to get some rest.
Nathan has always been close to me. My ex-husband used to joke, if there was a fire, you lead and Nathan will follow you, the other kids will just follow Nathan.
Even though Nathan doesn't speak much. It is almost like we have a special way of communicating. He will look in my eyes and it is like he is telepathically trying to communicate with me.
I believe it is entirely possible that my son, despite having Autism, sensed my level of distress and responded with empathy to help alleviate it as much as he could.
He is such a sweetheart. A teddy bear with a good heart. That's my boy.
Wednesday, June 18, 2008
What a Brilliant Day We Had Today
First off, per report for Nathan's summer school, his para had written the days of the week on the board from Monday to Friday, and was going to get Nathan to read them.
Nathan proceeded to yell and took the whiteboard pen off her and wrote Sunday before Monday and then Saturday after Friday.
Then he proceeded to write the numbers from one to ten in letters on the board.
Last Thursday for Nathan's NAET treatment, we removed an allergen for Pertussis.
I have maintained that Nathan's Autistic symptoms appeared just after he'd had his routine vaccinations.
This week I am hoping that we will do the MMR or the DPT.
I have noticed that since last Friday, his spontaneous speech has increased and he appears to be making almost a forced effort to say words when playing with his siblings or doing things on his own.
Once again, I feel that his speech is gaining in clarity also.
On Saturday, I pulled the garbage bag out of the receptacle and had just tied it up to take out and Nathan came running up to me, took it out of my hand and headed up the backyard with it to throw it over the fence into the trash container.
Once I had picked my jaw up off the floor, I thanked him profusely, he had never done that before, nor shown any inclination to learn that skill.
We do a lot of musical therapy at home. I like to sing. It is a good stress release for me and what I lack in talent, I make up for in volume.
The children all take turns dancing with me and with each other.
We also improvise with instruments and I am currently teaching the girls to play the spoons.
I sing phrases and sometimes they repeat them.
Nathan has always been tolerant of our music sessions and sometimes he will willingly come in to the kitchen and he and I waltz with him standing on my feet but he has never hummed or attempted to sing.
This afternoon when I got home from Rachel's dentist appointment, he asked me for juice.
Kathleen was having a conniption and was yelling as she wanted a toy that John had so I sang a one liner that I often repeat.
It goes, I'm in the mood, for dancing, romancing and love...
Well, I got the romancing part done and then Nathan who was standing beside me, sang the last two words.
It was so heartwarming. He is watching, he is learning, and now that he is able, it is all coming out.
I couldn't be happier. He has never ever sung before. Not only did he have the two words in the right spot, he sung them!
Looks like we are having a party at my house tonight.
First Eric didn't want to go to sleep until midnight, then shortly after, Kathleen got up and shows no sign of going back to bed.
There is a gentleman who teaches weekend seminars on NAET in Montana.
I would really like to go and learn it so I could do it at home and get John and Kathleen started on them.
With the progress that I have seen with Nathan, I am confident that it would help them too.
Sunday, June 15, 2008
ADHD and NAET Progress.
Let's start with John and his herbal treatments for the ADHD.
He started summer school after being off for 3 weeks last Monday.
The aide that brought him home said she was shocked. She had mentally prepped herself for what she believed was going to be a trying day with John.
Until John started taking these herbs, transitioning was a very difficult thing for him. I was very interested to find that he did well at school and completed his assigned work without problems.
She not only sounded surprised but kind of relieved and I don't blame her. It is nice not having to put up with the tantrums anymore.
We have finally started to clear the immunizations with Nathan's NAET treatments and I have been waiting for this for a while as I wondered how much of a difference it would make.
Well, it has made a bit of a difference.
On Thursday we cleared Pertussis and on Friday he was wandering around the lounge room talking to himself. He was naming things and repeating words and phrases that he must have heard in the past and later in the evening while playing with his siblings, he was throwing out words to them at intervals, almost like he wanted to join them verbally as well as in play.
And today, I took the garbage bag out of the container and tied it up and this young man came jogging over and took it off me and headed up the back yard with it.
Nathan took the trash out for me. I didn't even ask him to!
Could have knocked me over with a feather.
I am so impressed with the changes in both of these boys over the past year. They are just not the same kids. They have come so far and God willing will go further.
Saturday, June 7, 2008
Kathleen is Evolving Again
She is on the AIM program and apart from loving her and spending one on one time with her, she is currently not recieving any other treatments.
Kathleen goes through periods where she improves significantly for a week to 2 weeks then plateaus and seems to regroup.
Currently her focus seems to be asserting herself and she went at that with gusto.
Ordinarily Kathleen would take a back seat and go and amuse herself if the other kids didn't want her to play but now, she looks for opportunities to join in. And will.
I had a talk to Rachel and Sarah about Kathleen. I explained as best I could about the Autism and how Kathleen really wanted to play with them but sometimes didn't know how.
This is where I can honestly say that my 6yr old daughter Rachel is a one of a kind.
She asked me questions and volunteered to help teach Kathleen the right way to ask people to play which she is endeavouring to do.
Kathleen responds very well to Rachel and I have often seen her trying to mimic things that Rachel has done. Not always at the same time but later when she is by herself.
She is also babbling in a sing song kind of way and some of it sounds like words.
We do a lot of music therapy in my house. I love to sing and it acts as a great stress release for me. I encourage the children to sing and dance as much as possible and even Nathan will come out and dance with his mum.
I am hoping that with all the extra hugs and time that Kathleen is getting this week will see her improve more in social skills.
I know that if we could get more speech out of her, we would improve her behaviours as she gets frustrated that we don't seem to understand what she is trying to tell us and I know that must be difficult for her.
Thursday, June 5, 2008
John's ADHD
Time continues to go by and John's ADHD continues to improve with the herbal treatment on almost a daily basis.
Tantrums are a thing of the past for which I am exceedingly grateful.
Always a reader, he is able to sit and concentrate on a book without flapping.
It must be a heck of a relief to him!
And, I am proud to say. He continues to gain weight.
Thursday, May 29, 2008
John's ADHD Herbal Treatment
In the last week alone he has started to gain weight and he is not constantly eating.
Anyone with children who have ADHD will tell you that their hyperactivity burns an awful lot of calories. It is difficult to get the child to maintain a decent weight without using supplements.
John has not only gained weight, he has also cut his intake.
Having Autism and ADHD is quite a combination. I have a son who flaps vigorously. Or should I say, I HAD a son that flapped vigorously.
His flapping has reduced significantly. It is now possible for him to watch his favourite movie without the hand movements and the jumping up and down. It certainly makes watching television more pleasant for everyone else.
Transitioning has always been a problem for John. If he was concentrating on something and you asked him to do something else, you would get him screaming, slapping the back of his head and a nasty meltdown.
Since he started week 6 on Friday. I can honestly say that I have not seen a major meltdown from John. Occasionally like when the power went out tonight while he was watching a DVD, he objected verbally but when I explained about the lightning storm and asked him just to turn it back on, he did. There was no screaming, nothing.
I asked him to help me take out the trash on Monday night. He asked if he could play on the swing on the way out and I asked him to wait until we had done the trash.
He did!
Not only that but when I asked him to come inside 10 minutes later, he hopped off the swing and followed me in without a murmur.
Subjectively, and this is probably the odd one and I will try and download the photos from my camera in the next two days and post one here, his smile changed.
Ordinarily when I have taken a photo of John, I have got the mouth full of teeth "Cheese" smile.
I took a photo of him on Saturday and it was a regular smile. It makes his whole face look different.
Even his respite worker thinks that he is improving so it is not just my view point.
As time goes by apparently with this herbal treatment, his behaviour will continue to improve and it also works on the symptoms for Autism, so the flapping will improve as will the social skills and the eye contact etc.
It all looks great so far and there have been no side effects.
Later.
Sunday, May 25, 2008
Treatments For John's ADHD
We had a swingset put in at the end of the week and unfortunately due to the rain, the kids have not been able to play on it.
I explained to John on Friday that it had been set in concrete and we had to wait for it to dry.
He asked me what concrete was and accepted my explanation and went off to find something else to do.
In the past this would have led to me getting screamed at and slapped and him smacking the back of his head and pulling on my clothes. It would also have meant that there would have been multiple assaults on the windows leading to the backyard and him trying to pick the keys out of my pocket for the rest of the evening.
His flapping has seriously decreased to the point where he watches his favourite program and is just sitting there with no movement.
He came and asked me today if I would help him bake a cake which we did together but the best part was when I pulled it out of the oven and asked him to wait until it cooled so we could ice it.
HE DID!!!!!
Woohoo.
A few minutes ago he asked his sister Rachel if she would play garbage trucks with him.
It is a role play game that he made up from watching a Backyardigans movie. He Made It Up.
Unheard of for an Autistic kid with the degree of Autism that he has.
He is doing absolutely bloody marvelous.!
He looked outside and saw it was raining this morning and said "Guess that means we can't play on the swing set today, oh well".
How sweet is that!
At last, a little light at the end of the tunnels.
It is not only dealing with his ADHD but also with the Autism symptoms.
Yahoo.
Sunday, May 18, 2008
Good Days and Bad Days
Kathleen was fairly convivial this morning but she threw the most major tantrum at lunchtime.
She was at the table with her sisters eating then decided that she didn't like me to sit at the side of the table where I was feeding Eric, she wanted me to sit at the top.
So she pushed and climbed up on the chair behind me and shoved me with her feet and screamed some.
When I finished feeding Eric, I moved to the seat that she wanted me to sit in.
All was well for a few minutes then she noticed that there was a dining room chair in front of the computer so she got up to bring it to the table.
She couldn't get the chairs to go into the table together and started to get very frustrated and started screaming. Our attempts to help her to get the chairs to fit failed and she just went bright red and then she started biting her arm.
She did this a couple of times before finally giving up and running off.
It was one of the saddest moments of my life. Never had I felt such despair and I began to wonder if this was it.
If this was the best that we were ever going to have.
Even now as I type this I am crying again.
I just want so desperately to help her and she was doing so well and has come so far with her Autism over the past year and now to start biting herself. Where does it end?
I am more than a little despondent at this time.
No doubt tomorrow I will pick myself up, dust myself off and start all over again. But for today, I think I will allow the tears.
Later.
Wednesday, May 14, 2008
Still Working With John and His ADHD
It is now 4 weeks since John started on the herbs for his ADHD.
It apparently, because it is an herb, does not kick in until week 5.
Already I have noticed that on some occasions when he would flap in the past, he has not been.
I am getting more gibberish but then also, when I sit him down to do his homework, he is appearing to be more focussed which is nice.
Next week we will see whether it is really making a difference.
I bought a two month supply so I should be able to know by then whether it is worthwhile continuing on the herbs for the ADHD or if I will have to look elsewhere.
Tuesday, May 13, 2008
Looking for a Natural Cure for the Symptoms of ADHD
In addition to his Autism, John has ADHD.
What a combination!
A hyperactive child who doesn't pay attention to what is going on in the real world around him.
I have tried meds for the ADHD without any success.
I tried coffee for the ADHD without any success.
That is not to say that either of these treatments won't work for ADHD. I have friends whose children's symptoms are controlled quite nicely using these modalities.
I think that each of these children respond to different treatments.
Currently I am using an herbal remedy that is meant to lessen the Autism symptoms and another to help with the ADHD.
Being herbal, it will take several weeks to kick in. We are currently on week three and he is having good days and bad days. I think that his flapping has decreased somewhat and he is doing some nice school work but it is still too early to tell if it is going to be effective or not.
This morning he decided that he was not getting in the car to go to school. We attempted to jolly him along knowing that if he was allowed to go back inside, the tantrums would increase in magnitude the next time he decided that he didn't want to go.
I can hardly wait to read today's report from his teacher.
I am thinking that I may drop in to the school this morning and see how he is doing.
They are using a lot of heavy sensory input at the school also.
Later.
Tuesday, May 6, 2008
Children with Autism Don't React Well to Change
Sunday, May 4, 2008
Summer is Coming
Less than 3 weeks till summer vacation.
I have to come up with some neat stuff to keep the inmates from getting bored.
It is hard to organize play dates for children with Autism. Not a lot of other parents think of inviting your children to their houses to play with their kids.
It is kind of a shame really as John would like to play with other children but being Autistic, he doesn't have the skills to initiate a freindship.
Unfortunately, I don't know enough of the other parents around here to develop a relationship with them that would foster reciprocal visits.
Yes it is true that my children being Autistic have a few idiosyncrasies but they are not leppers and they are not dangerous, they just sometimes do somethings differently.
They love to kick around a ball, they love to ride bikes and they love to play tag.
Just like any other kid.
They may not talk as well as some of the children around here, but they are not mean spirited and they will not say hurtful things. They are just children plain and simple who by an unlucky draw of nature have Autism.
I hope to get a swingset set up in the backyard before summer comes and I will call as many parents as I can think of to see if any of them want to send their children over here to play and hopefully that will break up the monotony of the long summer.
Sometimes it is hard to get things done around the house as I am only one woman and unfortunately I don't have any menfriends who can do things like fix bikes and the such. But I try to do what I can.
Hopefully my friend's husband will bring a mate to help set up the swing set or it is going to be a very interesting day I am sure.
And of course, there is always the play pools.
Later
Saturday, April 26, 2008
Living with Autism can be Funny
Saturday, April 19, 2008
Noise Sensitivity for Children with Autism
It is difficult to determine how much noise really affects children with Autism but, it certainly seems to have an adverse effect on a majority of them.
When Kathleen first started showing signs of Autism, at first, I thought that she had a hearing deficit as she wouldn't turn her head when I called her name and if I banged two spoons together behind her, she didn't get startled or look to see where the noise originated from.
When she started stacking blocks and lining up all the animals in the house however, I had my answer.
A number of children with Autism can't stand the noise of common things like vacuums and lawn mowers leading them to have massive size meltdowns when these activities are being performed. It is not so hard to adjust your schedule around the needs of your child but it is a little difficult to try to explain to the people two doors down that your child can't handle the sound of their lawnmower and could they please warn you in advance so that you can plan for the inevitable meltdown.
Sometimes desensitization can enable your child with Autism to cope a little better with the noise.
When they were smaller, I kept a radio running 24/7.
At first, it was only on very softly and of course it was on an easy listening channel not something that was designed to shock their ears. I kept this up for several months before turning the volume up just a wee bit higher. This continued in minute increments for some time and I am pleased to say that usually normal noises do not bother my children.
However, currently we live fairly close to a railway track and that took some getting used to as it is a busy line and trains travel through town frequently throughout the day and they blow their whistles. Really, really loudly!
To start, the children would get upset and scream when outside when the trains blew their whistles. I found that if I heard them coming and covered up the children's ears, that helped a wee bit but not really enough so it was back to desensitizing.
First off they were kept inside. We can still hear the trains from inside the house but it is somewhat muted.
Then I cracked the kitchen window open a bit. Once again, a little muted but louder than before.
This went on for a bit and the window kept getting opened wider and wider and then I advanced to the back door.
Now I am pleased to say that none of my children with Autism are bothered greatly by the train.
My 4 yr old is still a little shy of them but she doesn't run to me as often now to hold her ears.
Assembly time at school is a little trial for John. There is a lot of noise and the gym echoes. Some days he handles it better than others. Ear phones were trialed for a while.
The nice thing about John is that he can now tell you if it is too loud and request to leave. This avoids potential behaviour problems and is a lot more comfortable for him.
Last year I took him to the Halloween party at the elementary school and I will say that the music was too loud even for me. He walked in there, covered his ears and said "mum, I can't handle this, there's too much noise. Can I go home?"
So he was taken immediately home.
I don't know if it the volume of the noises so much as the fact that there is just so much going on and it is too busy when you add volume. I know for a fact that John can hear what people say when they are standing next to him, meanwhile he is also hearing what people are saying standing apart from him and also what others are saying a distance away, all the while hearing all the environmental noises. A regular person can block out all the other noises and just listen to the one conversation while still being aware that there is other things going on.
An Autistic person seems to hear everything at the same time and to try and process that all at once must be really mind blowing.
Desensitizing takes a bit of time and energy but for the Autistic child's comfort, I think that it is well worth it.
Later.
Friday, April 18, 2008
Conference on Autism
On Monday and Tuesday I had the pleasure of attending an Autism conference run by the Anne Carlsen Center in Bismarck.
It was presented by Dr Stacey Goresko who has an Autistic son.
The focus of this conference was to present a treatment for Autism that was developed by Dr Steve Gutsein, a psychologist, who himself apparently has ADHD.
His theory is that the children with Autism deserve a "do over".
Their social development comes to a halt when they become Autistic and if they are taken back to the same time, this is a little hard to express, but basically they need to learn the social skills of babies or toddlers.
They need to go through a stage where they discover for themselves that they can learn from their mentors or guides. (parents or caregivers)
From what I could determine, it is a social basis for the child to draw on.
ABA teaches children to remember things by rote e.g. if I do this then this happens.
That is nice, but the world is not in black and white. If you throw something out of the ordinary at these children, they can't cope with it as they may not have a learned behaviour for it.
I can see what Dr Gutstein means. His consultants teach the parents/teachers who teach the child with positive dynamic interaction to think about why things are happening rather than giving them the answer and expecting them to learn it.
This way, the child has something to fall back on and also, this can be built on so the child has more episodic memories to draw on.
It teaches them to think for themselves.
I think that some of this can be used with my three children and will probably attempt it several times a day to see how it works.
The consultants, once they have done their initial face to face assessment conduct the rest of their coaching via videos posted by the parents on a website.
To contact them www.RDIconnect.com
I really missed my kids while I was gone. I had a couple of good friends who stepped in for me. I think that the kids were happy to have me back too. Thanks so much to those who helped me attend this and to West River Special Ed for providing the opportunity.
Later
Wednesday, April 16, 2008
Nathan
Nathan is 8 yrs old now. I would think that he is moderately Autistic with little speech.
I will add that since he started the NAET treatments, we have seen greater clarity in his speech and today I think that there was a little bit more intonation to his speech.
Usually he speaks in a kind of monotone. It sounds almost like a deaf person. But it has improved significantly.
He is also starting to become a little more active. He is running more now and it seems that he is becoming more inclined to walk off.
I am unable to determine where it is exactly that he wants to go but, he just meanders off. He is not upset or angry when he is brought back so who knows, maybe he is just enjoying the sunshine.
After we get back from his NAET treatment tomorrow, I think that I will take him for a walk and see if that does well for him.
The more progress that I am seeing with his NAET treatments, the more excited I am about going to them. The last 3 weeks, it seems that everytime I go, I have something new and exciting to tell his practitioner.
I believe that we only have about 15 more treatments left so I remain very hopeful that we will see a significant difference in regards to his Autism by the end.
Saturday, April 12, 2008
Postnasal drip in Children with Autism
A lot of parents of Autistic children report that their child suffers from an almost constant postnasal drip, which basically means that there is always fluid dripping down the backs of the child's nasal passages.
Nathan suffered from this malady and I noticed the other day that it does not seem to be bothering him as much.
In the past before we started the NAET treatments, this seemed to be a constant thing. He would almost constantly be clearing his throat and snorting through his nose as if there was liquid in there.
Since he started the NAET treatments, this has decreased to the point that I almost never hear him clearing his throat anymore.
This would lead me to believe that the postnasal drip is allergy related and if that is the case, how many more symptoms of Autism are caused by allergies.
If you have a child with Autism, I would highly recommend that you at least get your child tested for allergies.
Over time, a postnasal drip can only corrode the canals that it travels down and it must be annoying as all heck for the child who has to almost constantly be clearing their throat.
Later
Friday, April 11, 2008
Nathan's NAET treatments
Well, the interesting thing about NAET is that it doesn't fully clear the allergen until the following day, so it you are going to see the results of the treatment then it will be on the day after.
Nathan's teacher reported today that Nathan walked quickly down the halls today and that he jiggled his feet under the desk, something that he has apparently never done.
I have noticed that in the last couple of weeks that my usually sedentary Autistic son has been a lot more active. Indeed he is moving around much more than he has ever done.
That is a good sign.
I was kinda hoping that the speech would kick in more than it has but, I guess that I really have to be patient.
Later







