Sunday, May 4, 2008

Summer is Coming

Less than 3 weeks till summer vacation.
I have to come up with some neat stuff to keep the inmates from getting bored.

It is hard to organize play dates for children with Autism. Not a lot of other parents think of inviting your children to their houses to play with their kids.
It is kind of a shame really as John would like to play with other children but being Autistic, he doesn't have the skills to initiate a freindship.

Unfortunately, I don't know enough of the other parents around here to develop a relationship with them that would foster reciprocal visits.

Yes it is true that my children being Autistic have a few idiosyncrasies but they are not leppers and they are not dangerous, they just sometimes do somethings differently.

They love to kick around a ball, they love to ride bikes and they love to play tag.
Just like any other kid.

They may not talk as well as some of the children around here, but they are not mean spirited and they will not say hurtful things. They are just children plain and simple who by an unlucky draw of nature have Autism.

I hope to get a swingset set up in the backyard before summer comes and I will call as many parents as I can think of to see if any of them want to send their children over here to play and hopefully that will break up the monotony of the long summer.

Sometimes it is hard to get things done around the house as I am only one woman and unfortunately I don't have any menfriends who can do things like fix bikes and the such. But I try to do what I can.

Hopefully my friend's husband will bring a mate to help set up the swing set or it is going to be a very interesting day I am sure.

And of course, there is always the play pools.
Later

Saturday, April 26, 2008

Living with Autism can be Funny


So much has happened this week that I almost don't know where to start.


John started on an alternative medicine for his ADHD. We have been having some good days and some not so good days. As it is herbal, they said not to expect it to kick in for approx 5 weeks so I am just waiting and hoping.


Nathan went to his NAET treatment and we had to retreat the same allergen as we did the week before. He was very calm and quiet during this treatment. A different child from the one that had attended with me the week before.


Kathleen currently has a thing for eggs. She will crack some into the frypan and lay the spatula on the counter next to the stove and then go and get me. I worked out in one day, I was cooking close to a dozen eggs and was a bit concerned about her eating so many but then I noticed one of our dogs sat continuously outside the kitchen window. Just sat there, didn't move and I thought that was a bit odd.

Well, I did until I noticed that Kathleen was taking her egg over to the window, eating a little of it and then the dog puts her paws up on the side of the house and she is so big that her head is at least up to the window and she takes the egg gently off Kathleen.


Katy is best friends with the dogs, she loves them and they tend to follow her around the yard. She feeds them on a regular basis. She attempts to ride the big one and she is so used to the kids that she lets her get on and then she sits down. At times Katy gets so frustrated with her but then they make up pretty quickly.


Nathan has a very infectious laugh, when he chuckles it just makes you want to laugh. Today while I was changing Eric in the dining room, I could hear Nathan in the kitchen and he was just chuckling up a storm. That usually means that he is up to something so I sent Rachel to see what he was laughing at. She came back and reported that he was laughing at the juice bottle.

Couldn't see much to laugh of about that but as I rounded the corner I realized, he had taken the opportunity while I was busy and not there to watch him, to drink out of the bottle and he was taking a drink and then just chuckling up a storm. I guess he figured he was putting one over me.


Kathleen took a nap this avo. She is amusing herself in the loungeroom. I put Blue's Clues slippers on her after her bath and she thinks they are the most wonderful things. She lay on her back on the floor, put her feet in the air and waggled the ears of those slippers for the longest time.


Sarah being a very independent young lady decides on what she is going to wear and won't let anyone tell her different. She comes up with some very unusual creations. She reminds us a bit of Molly Ringwold.


Our cat was outside surveying his kingdom this evening when he met a little dog that turned his evening stroll into a race up the nearest tree. A young boy collected the little dog but I couldn't entice the cat down. Nathan was very concerned and wanted to go get him.

He undid the window on the inside in the dining room but I put that back together. Then he undid the window winder from the kitchen and put it on the dining room window, I guess he intended to climb out it again to go get the cat.

Finally the cat did come down by itself and so I took it in to Nathan who was laying on the couch.

When he noticed the cat in my arms, he had a smile from ear to ear.


I think that Kathleen's comprehension must be pretty close to 100% now. We were all playing cats and dogs this afternoon and then John stopped and got himself some juice. He spilt some on the floor and I asked him to get a towel to cleanit up but before he had a chance to go, Kathleen was placing one on the floor and then patting it with her foot.


One of my friends gave us a spinning toy that has been so wonderful for all the kids. On Friday night, I took off the middle piece so Nathan could sit on it more comfortably and asked him to cross his legs which he did. Then I spun him and boy does that thing go fast. He would go round a few times and then fall off and lay on the ground giggling up a storm. It was a hoot. Everyone except me got a turn. Eric loves it too.


Eric got hold of the phone today and carried it around murmuring to the back end of it. He knows how to turn it on and gets upset when I push the off button. We took him to Glendive shopping on Friday and he went to the door and said "bye". It was terribly cute.


We did more grass seeding in the backyard today. Man that is a job and a half. I am having to chop up half the backyard with a shovel as the dogs and the kids have dug holes and some of the ground is so hard and grassless. It is my intention to get it as level as possible and grassed. I am not going to bring in more dirt so I am digging the holes bigger and leveling the area around them. So far it has worked pretty well. Nathan was really getting into it and I had him and Sarah helping me today. My back is killing me but, it will be worth it and I am glad that the kids are joining in. Tomorrow if I can walk we will do some more. I covered part of what we had done as I don't want the dogs redigging and tomorrow, I guess, I will try to rig up a fence.

The boys are doing really well. It is great that they are able to help me with things like moving stuff and fairly easy jobs. And I think it helps them learn too.

Later.

Saturday, April 19, 2008

Noise Sensitivity for Children with Autism

It is difficult to determine how much noise really affects children with Autism but, it certainly seems to have an adverse effect on a majority of them.

When Kathleen first started showing signs of Autism, at first, I thought that she had a hearing deficit as she wouldn't turn her head when I called her name and if I banged two spoons together behind her, she didn't get startled or look to see where the noise originated from.

When she started stacking blocks and lining up all the animals in the house however, I had my answer.

A number of children with Autism can't stand the noise of common things like vacuums and lawn mowers leading them to have massive size meltdowns when these activities are being performed. It is not so hard to adjust your schedule around the needs of your child but it is a little difficult to try to explain to the people two doors down that your child can't handle the sound of their lawnmower and could they please warn you in advance so that you can plan for the inevitable meltdown.

Sometimes desensitization can enable your child with Autism to cope a little better with the noise.

When they were smaller, I kept a radio running 24/7.

At first, it was only on very softly and of course it was on an easy listening channel not something that was designed to shock their ears. I kept this up for several months before turning the volume up just a wee bit higher. This continued in minute increments for some time and I am pleased to say that usually normal noises do not bother my children.

However, currently we live fairly close to a railway track and that took some getting used to as it is a busy line and trains travel through town frequently throughout the day and they blow their whistles. Really, really loudly!

To start, the children would get upset and scream when outside when the trains blew their whistles. I found that if I heard them coming and covered up the children's ears, that helped a wee bit but not really enough so it was back to desensitizing.

First off they were kept inside. We can still hear the trains from inside the house but it is somewhat muted.
Then I cracked the kitchen window open a bit. Once again, a little muted but louder than before.
This went on for a bit and the window kept getting opened wider and wider and then I advanced to the back door.

Now I am pleased to say that none of my children with Autism are bothered greatly by the train.
My 4 yr old is still a little shy of them but she doesn't run to me as often now to hold her ears.

Assembly time at school is a little trial for John. There is a lot of noise and the gym echoes. Some days he handles it better than others. Ear phones were trialed for a while.

The nice thing about John is that he can now tell you if it is too loud and request to leave. This avoids potential behaviour problems and is a lot more comfortable for him.

Last year I took him to the Halloween party at the elementary school and I will say that the music was too loud even for me. He walked in there, covered his ears and said "mum, I can't handle this, there's too much noise. Can I go home?"
So he was taken immediately home.

I don't know if it the volume of the noises so much as the fact that there is just so much going on and it is too busy when you add volume. I know for a fact that John can hear what people say when they are standing next to him, meanwhile he is also hearing what people are saying standing apart from him and also what others are saying a distance away, all the while hearing all the environmental noises. A regular person can block out all the other noises and just listen to the one conversation while still being aware that there is other things going on.
An Autistic person seems to hear everything at the same time and to try and process that all at once must be really mind blowing.

Desensitizing takes a bit of time and energy but for the Autistic child's comfort, I think that it is well worth it.
Later.